This week is National Epilepsy Awareness Week. I was hoping to take advantage of this and post quite a lot, however, as Sod's Law of course dictates, I instead spent the first half of this week recovering from a nasty cluster of seizures!
At 9.50AM on Tuesday I finally had my appointment with a neurosurgeon to discuss the possibility of Vagnus Nerve Stimulation (VNS). Although hospital appointments are probably one my most familiar situations, in which I normally feel worryingly comfortable, for the past week or so this specific meeting has been making me excessively anxious. One thing … Continue reading VNS Update!
My life is definitely moving forward but at an embarrassingly slow pace. It's a bit like when you stand still on a travelator, only I just don't have the motivation to start walking and consequently speed things up. I know roughly where I want to go but it seems I don't want to get there. … Continue reading Morbid Metaphors
The past few months have been excessively tough. I've held back from writing because part of me still doesn't want to admit just how bad things have got. Over the 17th and 18th of February I had 30 seizures in just as many hours. It hit me hard (as you'd imagine) both physically and mentally. … Continue reading Things have to get worse before they get better
On the surface my life is really great at the moment. I've just got back from a holiday in Amsterdam, next week I'm off to Southampton to visit a post-grad fair and my creativity appears to be at an all time high. Yet below the skin, there's a massive elephant suffocating me. Now, before you … Continue reading Well This Sucks!
The last few weeks I've not felt good. I've had more seizures than I'd like to admit and have been feeling lower than I have done in years. Medication has never really worked on the seizures but for the past two and half years it has done on my depression. The other night I felt … Continue reading Into the Abyss
No matter how many personal demons I've beaten this year there's one monster I simply cannot slay! That monster is called PIP. This isn't a case of mind over matter. I've literally not been given the opportunity to start my fight. Or rather we lost the first round and six months later are still waiting … Continue reading The One Monster I Can’t Slay
As I said in the blog I posted this morning, there has been a lot of talk about epilepsy in the news this week. Mainly in relation to Billy Caldwell and the home secretary, Sajid Javid, allowing the NHS to supply him with medicinal cannabis. Today Javid delivered a statement to the cabinet announcing not … Continue reading One small step for man, one giant leap for people with epilepsy
This past week both ASD and epilepsy have been in the news a lot. It’s a strange feeling as for years I've wanted to see both of my conditions nationally discussed but being part of the discussion hasn't had the positive effect I thought it would. With the announcement of the AIMS-2-Trials I've spent the … Continue reading Discussing the AIMS-2-Trials
It's been exactly six weeks since I last uploaded a blog. Even now I'm not sure what to write I just know I need to write something. I've got through all the hard times and now that the road is slightly smoother (a bit like the local pavements) I'm struggling. As ironic as it sounds … Continue reading Tired Babble