This week is National Epilepsy Awareness Week. I was hoping to take advantage of this and post quite a lot, however, as Sod's Law of course dictates, I instead spent the first half of this week recovering from a nasty cluster of seizures!
At 9.50AM on Tuesday I finally had my appointment with a neurosurgeon to discuss the possibility of Vagnus Nerve Stimulation (VNS). Although hospital appointments are probably one my most familiar situations, in which I normally feel worryingly comfortable, for the past week or so this specific meeting has been making me excessively anxious. One thing … Continue reading VNS Update!
My life is definitely moving forward but at an embarrassingly slow pace. It's a bit like when you stand still on a travelator, only I just don't have the motivation to start walking and consequently speed things up. I know roughly where I want to go but it seems I don't want to get there. … Continue reading Morbid Metaphors
The past few months have been excessively tough. I've held back from writing because part of me still doesn't want to admit just how bad things have got. Over the 17th and 18th of February I had 30 seizures in just as many hours. It hit me hard (as you'd imagine) both physically and mentally. … Continue reading Things have to get worse before they get better
On the surface my life is really great at the moment. I've just got back from a holiday in Amsterdam, next week I'm off to Southampton to visit a post-grad fair and my creativity appears to be at an all time high. Yet below the skin, there's a massive elephant suffocating me. Now, before you … Continue reading Well This Sucks!
Two topics I've been wanting to write about for a while are my epilepsy and Brexit. However, I didn't think I'd be writing about them in the same blog. Today The Guardian published a letter that has been signed by epilepsy specialists, researchers and fundraisers. The headline reads: No-deal Brexit poses a potentially fatal … Continue reading No-deal, No Pills!
I have been writing New Year’s Blogs for four years now and I think this one may be the hardest for me to write, so I’m going to format it a bit differently. You see, the first nine months of my year were taken up by pretty much just one thing and since completing it … Continue reading New Year’s Blog 2019!
My dear followers you can now relax. There will be no more PIP themed poetry for now as my battle with the DWP is indeed over and I won. Big time. I have received far more than I ever thought was possible and I am extremely grateful, the feeling of disbelief that my dad and … Continue reading DWP 0-1 Susanna Fantoni
In 24 hours I get to fight my case I get to stand up against the human race, And all tribulations aside There's only one conclusion that I consider alright. It may not go my way It may not be ok So I've just got to hope that things don't stay the same. This is … Continue reading My Final Chance
My brain is as mucked up as Theresa May's council And even if they somehow survive I know I'll crumble, With an education system built on memory and not ability And a nine to five work life with no flexibility This world simply does not accept people with hidden disabilities. Society is changing But the … Continue reading 60% Like Me