DWP 0-1 Susanna Fantoni

My dear followers you can now relax. There will be no more PIP themed poetry for now as my battle with the DWP is indeed over and I won. Big time. I have received far more than I ever thought was possible and I am extremely grateful, the feeling of disbelief that my dad and … Continue reading DWP 0-1 Susanna Fantoni

My Final Chance

In 24 hours I get to fight my case I get to stand up against the human race, And all tribulations aside There's only one conclusion that I consider alright. It may not go my way It may not be ok So I've just got to hope that things don't stay the same. This is … Continue reading My Final Chance

60% Like Me

My brain is as mucked up as Theresa May's council And even if they somehow survive I know I'll crumble, With an education system built on memory and not ability And a nine to five work life with no flexibility This world simply does not accept people with hidden disabilities. Society is changing But the … Continue reading 60% Like Me

Into the Abyss

The last few weeks I've not felt good. I've had more seizures than I'd like to admit and have been feeling lower than I have done in years. Medication has never really worked on the seizures but for the past two and half years it has done on my depression. The other night I felt … Continue reading Into the Abyss

The One Monster I Can’t Slay

No matter how many personal demons I've beaten this year there's one monster I simply cannot slay! That monster is called PIP. This isn't a case of mind over matter. I've literally not been given the opportunity to start my fight. Or rather we lost the first round and six months later are still waiting … Continue reading The One Monster I Can’t Slay

One small step for man, one giant leap for people with epilepsy

As I said in the blog I posted this morning, there has been a lot of talk about epilepsy in the news this week. Mainly in relation to Billy Caldwell and the home secretary, Sajid Javid, allowing the NHS to supply him with medicinal cannabis. Today Javid delivered a statement to the cabinet announcing not … Continue reading One small step for man, one giant leap for people with epilepsy

Discussing the AIMS-2-Trials

This past week both ASD and epilepsy have been in the news a lot. It’s a strange feeling as for years I've wanted to see both of my conditions nationally discussed but being part of the discussion hasn't had the positive effect I thought it would.  With the announcement of the AIMS-2-Trials I've spent the … Continue reading Discussing the AIMS-2-Trials