Morbid Metaphors

My life is definitely moving forward but at an embarrassingly slow pace. It's a bit like when you stand still on a travelator, only I just don't  have the motivation to start walking and consequently speed things up. I know roughly where I want to go but it seems I don't want to get there. … Continue reading Morbid Metaphors

Things have to get worse before they get better

The past few months have been excessively tough. I've held back from writing because part of me still doesn't want to admit just how bad things have got. Over the 17th and 18th of February I had 30 seizures in just as many hours. It hit me hard (as you'd imagine) both physically and mentally. … Continue reading Things have to get worse before they get better

DWP 0-1 Susanna Fantoni

My dear followers you can now relax. There will be no more PIP themed poetry for now as my battle with the DWP is indeed over and I won. Big time. I have received far more than I ever thought was possible and I am extremely grateful, the feeling of disbelief that my dad and … Continue reading DWP 0-1 Susanna Fantoni

Nineteen Years

With the click of a button it all ends. Nineteen years of struggle and strife Nothing has ever felt so right in my life, Yet it feels so wrong Everything I've ever known is gone. I don't know which route is next But I know I'm ready to work it out step by step And … Continue reading Nineteen Years

10,000 Steps

The world is caving in on me Enclosing like the shell of an inedible oyster. Each sound and movement makes the tunnel tighter, The spark of light thinner And the air harder to breath. I envy those who move freely, Part of the hustle and bustle not even stopping to think. It is suggested that … Continue reading 10,000 Steps

The One Monster I Can’t Slay

No matter how many personal demons I've beaten this year there's one monster I simply cannot slay! That monster is called PIP. This isn't a case of mind over matter. I've literally not been given the opportunity to start my fight. Or rather we lost the first round and six months later are still waiting … Continue reading The One Monster I Can’t Slay

Discussing the AIMS-2-Trials

This past week both ASD and epilepsy have been in the news a lot. It’s a strange feeling as for years I've wanted to see both of my conditions nationally discussed but being part of the discussion hasn't had the positive effect I thought it would.  With the announcement of the AIMS-2-Trials I've spent the … Continue reading Discussing the AIMS-2-Trials