This week is National Epilepsy Awareness Week. I was hoping to take advantage of this and post quite a lot, however, as Sod's Law of course dictates, I instead spent the first half of this week recovering from a nasty cluster of seizures!
My life is definitely moving forward but at an embarrassingly slow pace. It's a bit like when you stand still on a travelator, only I just don't have the motivation to start walking and consequently speed things up. I know roughly where I want to go but it seems I don't want to get there. … Continue reading Morbid Metaphors
On the surface my life is really great at the moment. I've just got back from a holiday in Amsterdam, next week I'm off to Southampton to visit a post-grad fair and my creativity appears to be at an all time high. Yet below the skin, there's a massive elephant suffocating me. Now, before you … Continue reading Well This Sucks!
Two topics I've been wanting to write about for a while are my epilepsy and Brexit. However, I didn't think I'd be writing about them in the same blog. Today The Guardian published a letter that has been signed by epilepsy specialists, researchers and fundraisers. The headline reads: No-deal Brexit poses a potentially fatal … Continue reading No-deal, No Pills!
As I said in the blog I posted this morning, there has been a lot of talk about epilepsy in the news this week. Mainly in relation to Billy Caldwell and the home secretary, Sajid Javid, allowing the NHS to supply him with medicinal cannabis. Today Javid delivered a statement to the cabinet announcing not … Continue reading One small step for man, one giant leap for people with epilepsy
Over the years I've seen a number of occupational nurses, you know the kind that give you generic advice without considering how it's actually going to fit into your personal lifestyle. And although I've attempted to take some of their advice there is one thing which, despite it being advised to me on more than … Continue reading Internal Battle with a Pill Cutter
Two weeks ago tonight I had a seizure. It's the first in a long time and it happened in front of my whole family. I don't really know how to feel about it. I'd just finished filling my plate up with veg and as I sat down I could feel it coming up my spine, … Continue reading My Ups and Downs of Epilepsy