At 9.50AM on Tuesday I finally had my appointment with a neurosurgeon to discuss the possibility of Vagnus Nerve Stimulation (VNS). Although hospital appointments are probably one my most familiar situations, in which I normally feel worryingly comfortable, for the past week or so this specific meeting has been making me excessively anxious. One thing … Continue reading VNS Update!
My life is definitely moving forward but at an embarrassingly slow pace. It's a bit like when you stand still on a travelator, only I just don't have the motivation to start walking and consequently speed things up. I know roughly where I want to go but it seems I don't want to get there. … Continue reading Morbid Metaphors
On the surface my life is really great at the moment. I've just got back from a holiday in Amsterdam, next week I'm off to Southampton to visit a post-grad fair and my creativity appears to be at an all time high. Yet below the skin, there's a massive elephant suffocating me. Now, before you … Continue reading Well This Sucks!
Two topics I've been wanting to write about for a while are my epilepsy and Brexit. However, I didn't think I'd be writing about them in the same blog. Today The Guardian published a letter that has been signed by epilepsy specialists, researchers and fundraisers. The headline reads: No-deal Brexit poses a potentially fatal … Continue reading No-deal, No Pills!
The past few weeks, my life has felt very uncertain, even my present feels unknown to me. So in order to regain a sense of stability I've been relying on the god-send that is hindsight. My past is after all relatively certain. Over the last two years I have managed to overcome the majority of … Continue reading I’m Naughty and Proud!
No matter how many personal demons I've beaten this year there's one monster I simply cannot slay! That monster is called PIP. This isn't a case of mind over matter. I've literally not been given the opportunity to start my fight. Or rather we lost the first round and six months later are still waiting … Continue reading The One Monster I Can’t Slay
As I said in the blog I posted this morning, there has been a lot of talk about epilepsy in the news this week. Mainly in relation to Billy Caldwell and the home secretary, Sajid Javid, allowing the NHS to supply him with medicinal cannabis. Today Javid delivered a statement to the cabinet announcing not … Continue reading One small step for man, one giant leap for people with epilepsy
This past week both ASD and epilepsy have been in the news a lot. It’s a strange feeling as for years I've wanted to see both of my conditions nationally discussed but being part of the discussion hasn't had the positive effect I thought it would. With the announcement of the AIMS-2-Trials I've spent the … Continue reading Discussing the AIMS-2-Trials
On Tuesday night I felt almost as nervous as I did on the 23rd June and in many ways the experience was quite similar, only when I went to sleep at 3am the result wasn't yet decided. As I described it on Facebook: President Trump was definitely a possibility but not certain, a bit like Arsenal winning the league. … Continue reading US Election 2016: My Reaction
It was announced today that the amount of armed police officers to be deployed in London will go up by over 2000 by April next year. As a result there have been a lot of discussions regarding whether this actually makes people feel safer. I've lived in London all my life and personally I don't … Continue reading Are armed police officers really reasurring?