This week is National Epilepsy Awareness Week. I was hoping to take advantage of this and post quite a lot, however, as Sod's Law of course dictates, I instead spent the first half of this week recovering from a nasty cluster of seizures!
At 9.50AM on Tuesday I finally had my appointment with a neurosurgeon to discuss the possibility of Vagnus Nerve Stimulation (VNS). Although hospital appointments are probably one my most familiar situations, in which I normally feel worryingly comfortable, for the past week or so this specific meeting has been making me excessively anxious. One thing … Continue reading VNS Update!
My life is definitely moving forward but at an embarrassingly slow pace. It's a bit like when you stand still on a travelator, only I just don't have the motivation to start walking and consequently speed things up. I know roughly where I want to go but it seems I don't want to get there. … Continue reading Morbid Metaphors
The past few months have been excessively tough. I've held back from writing because part of me still doesn't want to admit just how bad things have got. Over the 17th and 18th of February I had 30 seizures in just as many hours. It hit me hard (as you'd imagine) both physically and mentally. … Continue reading Things have to get worse before they get better
On the surface my life is really great at the moment. I've just got back from a holiday in Amsterdam, next week I'm off to Southampton to visit a post-grad fair and my creativity appears to be at an all time high. Yet below the skin, there's a massive elephant suffocating me. Now, before you … Continue reading Well This Sucks!
The last two days have been extremely frustrating. On Tuesday I had my second Seizure Day since very slightly reducing my meds four weeks ago. Looking back over 2017 the amount of seizures I'd had was the only negative thing I could think of (I intend to write a blog about it once all my … Continue reading Four Seizures, Four Frustrations
Read the main blog first here! After writing a slightly negative blog I tried to end on a positive note and I chose to do so by using the quote 'Smile, It's Tuesday!' This may seem insignificant to most but to me, those 3 words mean a lot. In my first year at secondary school … Continue reading Mini Bonus Blog!
By the time I upload this tomorrow morning, I'll probably be sprint-walking across campus, 5 minutes before my first class starts at 9am! Right now, however, my glands are behaving like a waterfall, my stomach is burning like a volcano and every limb in body is shaking like a high magnitude earthquake! That's right friends, … Continue reading My Life in Similes!
It's the night before I return to Sussex to start my Master's Degree. It's my 4th year there and yet I'm sitting here fighting a giant panic attack. I've been putting off my packing all day as every time I think about it my heart starts rushing, my head pounding and my stomach churning. There … Continue reading The Night Before it Begins
Right now I'm struggling not to just write a long list of stereotypical similes. The truth is medically the last few weeks haven't been great for me. 3 weeks ago I ended up in A&E after having a cluster of seizures during 2 of which I turned blue or had cyanosis as the doctors say. I … Continue reading Rewind Part 1